Bulletproof.

2025 will go down as one of the hardest and most trying years I’ve experienced.

Following a successful first half-dose Ocrevus infusion in April 2024, I transitioned to the full-dose infusion in September 2024 and started noticing a difference in how my legs were feeling. Given it had only been six months on this MS medication, it was still considered new to me, so I just kept at it, allowing my body any patience it needed to adapt and adjust.

However, after the second full-dose infusion in February 2025, things started to go downhill pretty quickly and for ages too. That feeling in my legs was heavier than before and I soon lost my ability to walk. There was a point where my speech even started to slur. I had no idea what was happening but the only thing that had changed was the MS medication I was on. A very easy process of elimination.

The further away I got from that February 2025 infusion, the better I started to feel. My body was healing, my walking started returning, and I was finally starting to feel better. I wasn’t quite yet “me” but better than I was in the first half of the year and I even saw my first non-family human in October 2025! That’s how wiped I was. More than 8 months.

Following what I went through, my ambition towards advocacy is stronger than before. This also serves as a reminder that there are some people who wake up every day and don’t always get to live the life they have chosen but they still get up and show up. If you know someone like this, consider yourself lucky - some of the most committed, strongest, and resilient people you’ll ever meet. And people who most likely don’t fuss or complain but who just keep on going.

After lots of reading and researching, what I experienced was my immune and nervous systems going into shock. It’s not that Ocrevus isn’t a good medication, it’s just too strong for little me.

At the start of 2026, I sat down with myself for a chat - “How do you want to show up this year?” Given what I’d gone through in 2025, one clear answer was to change treatment to one that would be more manageable for my body and I. And so I chose Kesimpta. It’s a pre-filled DIY injection where you just push down at the injection site (generally upper thigh) and hear a click. About five seconds later you hear a second click and see a green line. Injection done. That’s it.

I’m so fortunate that for most of my MS journey, I’ve been the leader and MS has followed. Not 2025 though and I was not going to repeat that ever again. So here I am.

A new year, a new decade (40!) and the start of a new medication.

2026, baby. I’m back, bold and bulletproof.